It’s been a hectic 9 days.
Firstly… sometimes I don’t get the Austin Hospital at all. Don’t get me wrong… they’re a good hospital, not great for various reasons- discussed as we go along.
Seriously, you NEED money to have cancer. We’re lucky that we don’t have to pay for the hospital bill although technically as taxpayers, we’ve already “paid for it”. But whenever they send my mum home, it’s not for weeks, it’s just for a couple of days. Every 2-3 days she would need to be back in hospital to do one of the followings:
- lumber puncture (the needles they use are incredibly huge and gut wrenching to watch the patient have to go through it)
- checking of her bone marrow (again, painful)
-constant blood tests.
So, the cancer sufferer needs to have a mode of transport to get to and from hospitals. If there’s no one, then they try to organize one of the charities to drive them…
Luckily for my mum, she has either my dad or my aunt/uncle to take her.
But it’s very tiring for the cancer sufferer.
The worst is when they send you home after a blood test, only to call you 2 hours later (after you’ve settled back at home) that the cancer patient basically needs to be admitted because the blood count is low. One would ask- why don’t they keep the patient in the hospital whilst they wait for the result then making the patient and their family trek up and down.
Besides the fact that it’s inconvenient, or the fact that petrol is expensive or that we live at least 20 minutes away from the hospital, it’s actually inefficient at it’s best and leuakemia sufferer’s find it tiring. More so, if they’re blood results are bad which is why they’re admitted in the first place.
Clearly there has to be a better way to this.
I guess the other option is for the patient to stay in hospital for the whole duration- but it’s almost impossible, even though hospitals in “theory” would like to, they financially can’t. Due to our constant mismangement of funds by all levels of govenment, our health services are clearly lacking.
It would make sense to keep a patient like my mother in hospital longer… but the option isn’t taken.
and so we suffer.
it’s not just the cancer that drives us insane, it’s the beauracracy that comes with it.
and so in saying this, my mum is indeed back in hospital. The doctors KNEW this was perhaps going to be the case. We did go for a 9am blood test one saturday morning, we got home, then exactly 2 hrs later we had to rush her back into hospital. My mum was indeed very tired.
And basically she deterioated in front of our eyes in hospital.
Her neutifills (not sure if that’s how you spell it) were low- basically she has no immune system. And as the days progressed she ended up getting more sick…
But the truth of the matter was, she was feeling pretty tired (goes with the disease) since thursday… but her tests werent scheduled for Saturday.. and last time my mum complained about being tired, the docs were quick to point out that it’s very normal to feel that way..
They don’t do anything unless there’s test..
But im guessing if the tests were done sooner, it would have been detected sooner and treated sooner. I always feel like we’re on the back foot with this, always 2 steps behind the disease itself.
….
and then I had to travel for work… heading all the way to sydney…and i head back this afternoon.
juggling work, sick people, social life, relationships, wedding
is a tough life
Recent Comments